IIt may be very tempting to use a great Q&A site like stackexchange to get an answer to you problem, but I don't believe it is the best place to search for advice for your situation.
I would strongly recommend contacting an organisation that dedicated to your illness. They should be able to answer your questions, share their expertise, provide support.
A quick search lead me to http://www.meassociation.org.uk . (I'm not affiliated with this organisation.)
Good luck!